Biomedical Data Sharing Measurement

Uses

Other

Highlighted claims

• The review examined quantitative surveys that measure knowledge, attitudes and practices about sharing or reusing participant-level biomedical and health data. — How do we measure data sharing in the biomedical sciences? A measurement systematic review of biomedical data sharing-related knowledge, attitudes and practices across stakeholder groups, data types and geographies
• The review focused on survey instruments rather than the substantive survey findings. — How do we measure data sharing in the biomedical sciences? A measurement systematic review of biomedical data sharing-related knowledge, attitudes and practices across stakeholder groups, data types and geographies
• Eligible data reuse included direct sharing, secure access models, federated learning and virtual research environments. — How do we measure data sharing in the biomedical sciences? A measurement systematic review of biomedical data sharing-related knowledge, attitudes and practices across stakeholder groups, data types and geographies
• The review excluded tools focused only on biological sample sharing through biobanks or sample collections. — How do we measure data sharing in the biomedical sciences? A measurement systematic review of biomedical data sharing-related knowledge, attitudes and practices across stakeholder groups, data types and geographies