Data Linkage

How it works

Evidence quality

Other

Highlighted claims

• NHS England will conduct linkage using exact matches on NHS number, sex, and date of birth. — Blood Cancer Clinical Trials Long-term Follow-up Using Integrated Healthcare Systems Data (BLISS): protocol for a data-linkage study integrating randomised clinical trials with national healthcare systems data
• The Leeds Clinical Trials Research Unit will securely transfer personal identifiers to NHS England, which will return linked datasets through encrypted files. — Blood Cancer Clinical Trials Long-term Follow-up Using Integrated Healthcare Systems Data (BLISS): protocol for a data-linkage study integrating randomised clinical trials with national healthcare systems data
• Linked records will generally begin from each participant's date of randomisation, with cancer registration also covering the six months before randomisation. — Blood Cancer Clinical Trials Long-term Follow-up Using Integrated Healthcare Systems Data (BLISS): protocol for a data-linkage study integrating randomised clinical trials with national healthcare systems data
• BLISS will report the number and proportion of trial participants successfully linked to each data source overall and by trial. — Blood Cancer Clinical Trials Long-term Follow-up Using Integrated Healthcare Systems Data (BLISS): protocol for a data-linkage study integrating randomised clinical trials with national healthcare systems data
• Each individual will be assigned a unique BLISS ID because some participants may have enrolled in more than one trial. — Blood Cancer Clinical Trials Long-term Follow-up Using Integrated Healthcare Systems Data (BLISS): protocol for a data-linkage study integrating randomised clinical trials with national healthcare systems data